Shrewsbury couple add their voices to Lost for Words campaign about strokes

News from our partners Stroke Association

Shrewsbury stroke survivor Maxine Barnes, 53, is one of the thousands of people who has experienced communication difficulties, after a stroke left her unable to speak for 15 months.

Childhood sweethearts Maxine and her husband Mark, 54, were on holiday in Orlando, America in April 2016, when Maxine collapsed with a severe headache. Maxine was admitted to hospital where she was diagnosed with a subarachnoid haemorrhage, which led to two strokes. Maxine was in hospital in America for over six weeks and underwent major surgery to reduce the swelling on her brain, before she was transferred to Royal Shrewsbury Hospital.

Initially when Maxine returned to the UK she was transferred from bed to a chair by a hoist and was PEG fed. Maxine was asleep for most of the time and was unable to communicate for 15 months. She was discharged home in December 2016 after eight months in hospital.

Mark and Maxine have been together for 40 years, and have been married for 35.

Mark said:

“I’ve played musical reminders of our memories to help wake Maxine’s brain up. As long as I’ve got breath in my body I’ll keep fighting for my wife. She’s remarkable.”

Now Maxine’s PEG has been removed, allowing her to enjoy meals again, and she has recovered enough speech to have a conversation.

Mark added:

“Maxine is now recovering beyond our wildest dreams. Initially it was a very dark time, and I was spending 12/14 hour days by her bedside, not knowing if the next day would come. Although Maxine didn’t speak for 15 months, I never stopped speaking to her like I always have done. One morning I asked how she was, as I do every morning, and she replied with: ‘I’m OK!’ Her speech progressed from there.

“Minute to minute Maxine is good with conversation, but she still gets very confused and her memory has been affected. However, she can name all six of our grandchildren. Maxine does know that she’s had a bleed on her brain, but doesn’t realise just how poorly she’s been. We’ve shed a lot of tears, but we’ve come so far and I would advise anyone going through a similar situation to never give up. We’re hoping 2018 will be a better year.” 

The Stroke Association’s Lost for Words campaign aims to raise awareness of the challenges stroke survivors with communication difficulties can face, and help and support available. 

Sarah Evans, Stroke Association Support Co-ordinator, has supported Maxine and Mark throughout her recovery.

Sarah said:

“After a stroke, around one in three people like Maxine have difficulty communicating, which can be both terrifying and isolating. But with the right help and support, many stroke survivors are able to find new ways to communicate, and can rebuild their lives.

“Mark and Maxine are an inspirational couple who clearly love and respect each other. Mark and the family have worked together to support Maxine on her road to recovery. They have never given up and I feel honoured to have met and supported them.” 

The Stroke Association provides a Stroke Recovery Service in Shropshire, in partnership with Shropshire Council. More than 350,000 people in the UK have aphasia, a communication disability which can be caused by stroke. The Stroke Association is urging people to show their support for stroke survivors who are lost for words and make a donation. For more information, visit www.stroke.org.uk/lostforwords.

Further information

• A stroke is a brain attack which happens when the blood supply to the brain is cut off, caused by a clot or bleeding in the brain. There are more than 100,000 strokes in the UK each year; that is around one stroke every five minutes. There are over 1.2 million people in the UK living with the effects of stroke.
• Stroke Association is a charity. We believe in life after stroke and together we can conquer stroke. We work directly with stroke survivors and their families and carers, with health and social care professionals and with scientists and researchers. We campaign to improve stroke care and support people to make the best recovery they can. We fund research to develop new treatments and ways of preventing stroke. The Stroke Helpline (0303 303 3100) provides information and support on stroke. More information can be found at www.stroke.org.uk